Defeated by amines

It's been 62 days since we started our elimination diet to identify the causes of my son's eczema and I'm starting to feel defeated.  We've finally completed our amine challenge and now my son's eczema is the worst it's been in nearly two months.  During this period we've also faced two birthday parties, a Christmas party, Christmas dinner, and a week away with friends.  All of these occasions were poignant reminders of how little "normal" food we can eat.

It took three weeks to complete the amine challenge.  First we had to wait for his skin to clear from the previous challenge.  Then we delayed the start of the challenge so it would not interfere with his birthday party.  Next we had a false start when we found him chowing down on salicylate laden watermelon at a neighbor's Christmas party, and then we had to wait several more days for his skin to clear again before starting the challenge in earnest.

Amines result from the breakdown of proteins, and are found in chocolate, cheeses, old meat, fish,  and poultry (including "fresh" meat that has been stored in cryovac packaging, meat that has been frozen for a long time, and ocean fish that is caught a long time before it reaches the market), the skin of poultry (and probably of cows, pigs, and sheep as well, but we don't usually eat these), a number of fruits and vegetables and products derived from them, and most alcohol products.  For the challenge, we were required to consume bananas and chocolate in quantity for a week.  We were also allowed to eat papaya, tuna, and Colby cheese.  My son, who had never tasted chocolate before, was in heaven despite being restricted to very dark chocolate.  The first night of the challenge we had tuna carpaccio and banana splits, and the rest of the week we indulged in toasted cheese sandwiches and chocolate chip cookies.

His skin actually looked quite good during the challenge, which was belied only by the curious red circles that appeared in his armpit on the first day.  We were optimistic that we would soon be able to permanently reintroduce some foods into our diet, but three days after the end of the challenge we were faced with itchy eczema on his tummy, lower back and bum, his upper chest, the back of his neck, on his thighs, and behind his knees, with no alternative explanation to the recent amines.

The literature explains that there's little point in doing the remaining challenges (MSG/glutamate, Propionates, Sorbates, Benzoates, Antioxidants, Colors, Nitrites, and Sulphites) if you respond to both salicylates and amines because you will probably respond to everything else, which means we are now faced with an indefinite period on the elimination diet.

I now realize that I commenced this project expecting it to end after a month or so.  Two months into it we still haven't even finished the first round of challenges (we still need to challenge soy, which would normally be done prior to salicylates and amines) and are likely to have to follow it for many more months before we can enjoy only a few more of the foods we ate before we started the diet without having adverse reactions. 

At times like these it's tempting to say, stuff it, it's too hard.  The food we eat is quite good, but the constraints of the diet are antisocial. We cannot eat out at all, and I've had to provide virtually all our food when we've gone to parties (except at one birthday party, where the host gets a gold star for making sure there was a meat, a vegetable, and an hors d'oeuvre that we could eat).  When trying to plan a recent Christmas dinner with friends it became clear that it was too complicated to ask anyone to cook according to the
constraints of the diet, and it is now obvious that nothing ever satisfies the constraints of the diet just by chance.

So what's keeping me going?  Quite simply, it's the prospect of eliminating my son's eczema, reducing the likelihood of him developing asthma and hay fever, and saving him from the fate of his grandfather, whose childhood was shaped by asthma attacks, endless trips to the allergist for injections, and his mother wrapping his cracked hands each night to soothe them.